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ZoomWalkathon.com Video ConferencingIsla Rose Foundation is Actively Working to SaveChildren with Orphaned Rare DiseasesFOR IMMEDIATE RELEASE May 2020 (Southport, Merseyside) – The family of Isla Rose in Southport is fighting for the life of their 19-month-old daughter Isla Rose Steel. She was born in 2018 with a rare disease, Non-ketotic hyperglycinemia (NKH). It is an…

Mother whose baby has a rare condition that causes seizures which most children don’t survive now has hope after finding a 20-year-old US man who’s her ‘genetic twin’ on Facebook

A group of 20 individuals from Kew McDonalds in Southport have volunteered to complete a sponsored Snowdon climb on the 30th of October 2019. We are fundraising for the beautiful Isla Rose and the Lucas John Foundation.

‘Perfect’ baby girl diagnosed with a rare disorder after mum spotted her twitching. Little baby Isla has been diagnosed with a condition that is so rare, approximately only 15 children in the UK are still surviving with it. Read more about Isla story in the Liverpool Echo.