Archive for May 2020

In Your Community

Submitted by Sarah Steel Having been featured in the Liverpool ECHO last year, Sarah Steel, a mother from Southport whose daughter, Isla, suffers from a rare metabolic disorder, is now renewing her daughter’s appeal in an effort to generate funding for scientists to explore gene therapy trials. In 2018, after discovering little Isla’s hands were twitching, Doctors…

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ZoomWalkathon

ZoomWalkathon.com Video ConferencingIsla Rose Foundation is Actively Working to SaveChildren with Orphaned Rare DiseasesFOR IMMEDIATE RELEASE May 2020 (Southport, Merseyside) – The family of Isla Rose in Southport is fighting for the life of their 19-month-old daughter Isla Rose Steel. She was born in 2018 with a rare disease, Non-ketotic hyperglycinemia (NKH). It is an…

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